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In the US GINA bans health insurance companies from using genetic data for determining premiums or eligibility.

If it were legal you wouldn't have to worry about insurance companies mining genetic databases, it wouldn't matter, they'd simply demand a DNA sample in order to be insured.



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Insurance companies can't use genetic data, that's prohibited under GINA.

The Genetic Information Nondiscrimination Act (GINA) of 2008 already forbids them from doing anything.

>GINA prohibits health insurers from discrimination based on the genetic information of enrollees. Specifically, health insurers may not use genetic information to determine if someone is eligible for insurance or to make coverage, underwriting or premium-setting decisions.


No, using genetic information as a consideration in health insurance is expressly illegal in the US under GINA.

GINA law already prevents insurance companies from acting on this data.

It seems unlikely that this sort of genetic data is really a risk. To test that, I had my genome sequenced and published it with a reasonable license. Anybody is free to download my data.


Health insurers in the US are not allow to use this information in setting premiums. GINA is the law: https://www.genome.gov/about-genomics/policy-issues/Genetic-...

In the US, health insurance can't use genetic information (GINA law). It is unlikely to change, as the uproar would be significant.

The Genetic Information Nondiscrimination Act (GINA) of 2008 makes it illegal to base medical insurance premiums on genetic markers.

Luckily, GINA makes it illegal to use 23andme data for health insurance.

>But what about the people who will be rejected because of their genes?

That is illegal in the U.S., with the Genetic Information Nondiscrimination Act (GINA)

https://www.genome.gov/about-genomics/policy-issues/Genetic-...

>GINA prohibits health insurers from discrimination based on the genetic information of enrollees. Specifically, health insurers may not use genetic information to determine if someone is eligible for insurance or to make coverage, underwriting or premium-setting decisions. Furthermore, health insurers may not request or require individuals or their family members to undergo genetic testing or to provide genetic information.


No you can't.

https://en.wikipedia.org/wiki/Genetic_Information_Nondiscrim...

And if GINA was repealed, (and it wouldn't be, it was passed the House 420-3 a and passed the Senate 95-0), the insurance companies aren't going to beat around the bush and try to hack 23andMe, they'd just demand DNA samples directly as a requirement of being insured.


By US law (GINA, passed in 2008), health insurance companies and employers are barred from discriminating on the basis of genetic results. Life insurance companies are allowed to, as is housing and schooling, interestingly enough.

GINA also forbids the use of genetic information in health insurance and employment.

The Genetic Information Nondiscrimination Act (GINA) prohibits the use of genetic information to determine health insurance eligibility or premium

The Genetic Information Nondiscrimination Act of 2008 (GINA) specifically prohibits health insurance companies from denying coverage or setting rates based on such tests.

First off it's illegal for them to use genetic information in health insurance decisions in the US.

If it were legal and they did want to do it then why would they need to buy 23andMe to accomplish this? Instead they'd just refuse to insure you without you providing a sample of your DNA.


“Passed in 2008, a federal law called the Genetic Information Nondiscrimination Act (GINA) made it illegal for health insurance providers in the United States to use genetic information in decisions about a person's health insurance eligibility or coverage.”

Also prevents employment discrimination based on genetics.

https://www.genome.gov/about-genomics/policy-issues/Genetic-...

(disclosure: have had my DNA sequenced by 23andme and Harvard’s Personal Genome Project)


If you live in the US, the Genetic Information Nondiscrimination Act prohibits health insurers from using the data.

it's illegal for health insurers to discriminate using genetic information: https://www.genome.gov/about-genomics/policy-issues/Genetic-... ("Specifically, health insurers may not use genetic information to make eligibility, coverage, underwriting or premium-setting decisions").

No. The US Congress already passed a Genetic Information Non-discrimination Act in 2008 that makes it illegal for insurance companies to do this. They won't take your genetic data even if you offer it to them.
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