The evidence is thin because there’s very few children with the condition. A good number of them die by holding their breath. Very scary. It’s a complication of an already rare disorder. The medication has been around since 1966 though, it’s clonidine/catapres. The first doctor she mentioned it to just rudely corrected her on the pronunciation rather than give any actual feedback on whether or not it could help.
I think you’re absolutely correct about having dozens of other patients. My wife wrote a long email, that was forwarded to the doctors, citing various articles with links to the medical journals and the doctors couldn’t thank her enough for it. It wasn’t until that happened that someone prescribed the medication for her.
I think you’re absolutely correct about having dozens of other patients. My wife wrote a long email, that was forwarded to the doctors, citing various articles with links to the medical journals and the doctors couldn’t thank her enough for it. It wasn’t until that happened that someone prescribed the medication for her.
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